4 Comments

  1. Dear Mary, thank you so much for sharing this. Your words in this post and in the Pray More Lenten Retreat have helped so much as I have been travelling through the first year without my daughter. Please know that God is using you and your daughters story to be a blessing. Thank you!

  2. Sweet Mary, I sent you something once and you sent me a handwrittne thank you note and prayer cards! I was blown away. God led me to your writing a couple of years ago- in the middle of the night, with a sick baby. I was hooked and have followed you, and prayed for you since then.
    I wasn’t sure how to get in touch, but I need your help please. My best friend’s brother died earlier this year. He was sick from birth, but miraculoulsy lived for 30 years. His family did the same Lourdes trip that you did. His parents are wonderful, dear friends of mine- I love them so much. They are faithful Catholics and they are grieving much the way that you did, and still do. They don’t know anyone who can relate to their life or type of grief. I thought of you.
    May I please put you in touch with Julia, the mother? She lives in Savannah, GA and her son Daniel had Proteus Syndrome. I think that the two of you would be fast friends, and could empathize with one another in ways that most people can never do.
    You will see my email- if you have a spare moment, I deeply hope that you can reach out and I will pass her info along to you! God bless you sweet Mary!

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